About Our Work
Making Amyloidosis Harder to Miss
Explore the mission and people behind our efforts to advance awareness of every form of amyloidosis to help improve patient outcomes through education.
Why Awareness Matters
Better Knowledge, Better Outcomes
Our mission is to raise awareness of every form of amyloidosis, a rare disease that can be difficult to recognize. By making reliable information easier to find, we aim to help more people understand its signs and the importance of timely evaluation.
We work to advance knowledge among patients, families, healthcare professionals and communities so amyloidosis is less likely to be missed or misunderstood. Greater awareness can encourage informed conversations and support a clearer path toward diagnosis.
Ultimately, we want amyloidosis to be rarely missed, misunderstood, misdiagnosed or mistreated. Every effort to share accurate information brings us closer to better experiences and outcomes for people affected by the disease.
The Project Behind the Purpose
The Amyloidosis Awareness Project Inc. (TAAP) is a Canadian not-for-profit corporation (#1745053-2), dedicated to advancing knowledge of all forms of amyloidosis. TAAP was established around a clear purpose: to make this rare disease better understood. TAAP focuses on raising awareness so patients and those who support them have a stronger foundation for informed conversations and care. Through its awareness and educational work, the organization seeks to bring greater attention to a condition that can be overlooked, misunderstood or mistaken for something else. Its mission is to help improve patient outcomes by contributing to a future in which amyloidosis is rarely missed, misunderstood, misdiagnosed or mistreated.
What Guides Our Work
Education That Informs
To share clear, accessible information about every form of amyloidosis so patients, families, and care teams can make better-informed decisions.
Awareness That Leads to Recognition
To help more people recognize the signs of amyloidosis earlier, reducing the risk that this rare disease is missed or misunderstood.
Knowledge That Improves Outcomes
To advance understanding across the care journey so people affected by amyloidosis face fewer delays, misdiagnoses, and gaps in care.
How Our Work Is Supported
As a Canadian not-for-profit corporation, TAAP seeks financial support only to advance amyloidosis education and awareness, not to generate profits. Contributions help make reliable information more accessible and support efforts to improve recognition of this rare disease. We approach funding with a commitment to transparency and accountability: support serves our mission, and financial relationships will never determine the accuracy or independence of the information we share.
The People Guiding TAAP
Founder and President
Keith Dares
Secretary / Treasurer
Catherine Arsenault
Director at Large
(details to follow)